Saturday, May 7, 2016

M.E. And Me

August 8th was International Severe M.E. Day. (Myalgic Encephelomyelitis). I have had this illness for 19 years with 8 years of partial remission from using probiotics and bovine colostrum to heal my gut and boost my immune system.

I'm not in remission anymore and the viral load that has plagued me roams mostly unchallenged in my body and my brain.

In 2012 a bronchoscope confirmed I have Herpes Simplex I in my lungs. Between 2012 and 2014 the flares occurred throughout my body - lungs, stomach, inside my left hip, the upper part of my neck and then finally it moved into my brain.

Since then there is less specific pain but I have started having episodes - like TIAs -as the virus does lobectomies in my cerebellum. I don't know how long it will take, how far it will go or what it will take with it. I have yet to find a doctor with any idea of how herpes works in the non- HIV herpes world.

Teen Night at the Grizzly Rose

I'm just home from what I thought was a chaperone effort with my friend Jeanne; her daughter S. at the Grizzly Rose Saloon in Denver, CO. S. Is 14 and I used to party and dance at the saloon back in the day so I thought it would be a teeny bopper sleaze show. I mean that's how I treated it back then so I just extrapolated that it was sleaze bag training.

And yes it was just like that with everyone but S. There was no moping around as a wall flower or overcompensating by line dancing until your mascara sweated off by this girl.

First she danced the swing with her mom to about 5 songs. Then she rode the mechanical bull while I held the table. Then she insisted I come back into the roping room so she could show me how to rope. 

About roping: it's kind of ridiculous that I spent my whole life around livestock and rodeos and no one thought to teach me how to rope. Especially because I hit one horn of three of the four tries. S. is a beginner 

Saturday, December 20, 2014

#HealingThroughNutrition: Turmeric!

Turmeric. The most under-utilized spice with medicinal qualities in our kitchen cabinet.

I just learned: Turmeric is fat soluble. There are also capsules sold that may be easier on the stomach

Friday, October 31, 2014

Misconduct Complaint Filed With Utah Bar Against Attorney Lorie Fowlke

Filed by Adam Mackley 1:51pm Oct 31

Ogden, Utah 84404 ATTORNEY “LORIE FOWLKE” 
(801) 389-8771 BAR #6875

Lorie Fowlke in her own Affidavit, shown as, Evidence “A”, to conceal, made misrepresentations to newly assigned Judge Mcdade, about what statements she made on May 16th 2013. Lorie Fowlke’s Affidavit Paragraph 4 she falsely stated; 
”On May 16, 2013 during oral argument in this case I indicated words to the effect that none of the parties had signed a declaration of paternity. At that time, to my knowledge, this was accurate.” 
On May 16th 2013, Lorie Fowlke actually stated:
“As a matter of fact, in 302 and 303, which is a voluntary declaration of paternity provision, it specifically says that father’s [Adam Mackley’s] voluntary declaration of paternity is void unless Mr. Barney, the presumed father, files a denial of paternity, which of course has not happened in this case.” 
Evidence “B”. 5/16/13 Tr. at p. 28,, ln 1-5. Evidence “B”.
The fact is “Mr. Barney” Voluntarily signed the Denial of Paternity and did it with out my knowledge. Evidence “C” Also, July 2012 in court, the Voluntary Declaration of Paternity form, was handed to me in front of Lorie Fowlke, I filled out the sections; Name, Address, and Social Security Number, and then I handed it back to Adrienne, in front of Lorie Fowlke.

Statements have been continuously crafted to avoid, conceal and misrepresent the facts about this legal document, in doing so, constructively admitting to the knowledge of the Voluntary Declaration of Paternity, the Voluntary Denial of Paternity by Presumed Father and verifies there legal validity. 

Lorie Fowlke’s Affidavit Paragraph 7 she falsely stated;
“At no time did anyone involved in these two cases, including Adam Mackley, indicate to counsel that a Declaration of paternity had been executed.” 
This is false, because in court on May 16th 2013, I stated; 
“But I signed the VDP.” 
Following my statement Lorie Fowlke argued
“…[Adam Mackley’s] voluntary declaration of paternity is void unless Mr. Barney, the presumed father, files a denial of paternity, which of course has not happened in this case.”
Also On February 7th 2013. The Declaratory Judgment Case number 134400322 was, made the specific request;
“…requiring Adam Mackley to withdraw his declaration of paternity from the Utah Bureau of Vital Statistics.” Evidence “D”
On June 26, 2013, and again on August 22, 2013 Lorie Fowlke, in bad faith, filed proposed Order Granting Motion to Dismiss and Findings of Fact, Conclusions of Law, falsely indicating that the court ruled to dismiss my Case 114402136. Evidence “E”. The court did not rule on any motion to dismiss ever. And at the hearing on May 16, 2013, the trial court made a ruling on the declaratory Judgment. The court ordered Colton's attorney only, to prepare an order. 5/16/13 Tr. at p. 48.. In 9, 10. The court further stated, 
“That order then does not apply to case No. 114402136”. 5/16/13 Tr. at p. 48,, ln 17. 
Further the Motion to Dismiss was not before the court on May 16th 2013, because my case which held the motion, was stayed. On July 1st 2013, Lorie Fowlke persuaded court clerk Trina to transfer the Motion to Dismiss, from my case to the Declaratory Judgment Case and change the dates from February 4th 2013 to February 7th 2013. Evidence “F”.

Lorie Fowlke, will likely misrepresent the facts regarding this complaint, the much of the misconduct described, herein is newly before the (OPC), and all of it, is involving misrepresentations made to new Judge. Also the facts of the case is that Declaratory Judgment’s by design, can not be used legally to rescind a Voluntary Declaration of Paternity or Voluntary Denial of Paternity by Presumed Father, nor can it be used as res judicata to dismiss my paternity case, instead the Declaratory Judgment and courts ruling on May 16th 2013, only identifies that the correct presumed father, in fact, signed the Voluntary Denial of Paternity, legally validating my Voluntary Declaration of Paternity to my Daughter.

Lorie Fowlke, has made countless misrepresentations directly to the court, causing hardships to my family, extensive unnecessary litigation, and gross miscarriage of justice, 

DATED the ____ day of October 2014. 
Adam Mackley 

SUBSCRIBED AND SWORN to before me, a Notary Public, on this ______ day of October, 2014. 

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Tuesday, October 21, 2014

M.E.Sucks Donkey Balls

5th day of flare

Was going to travel today to next destination - leave date keeps changing. Will try next week

Zinger pain keeping me awake is perhaps a good sign that new trial meds are working but pain is so intense!

Neck and spine health are flared. 

BP and pulse are low. Nauseous. 

Indescribable fatigue. Even lying down it feels like I need to lie down.

Friday, September 19, 2014

Putting Music To My Anger

Leave it to my deep subconscious to pick a song, and I love to sing, to attach the feelings to from my struggles with my health due to the neuro immune illness MEcfs and my son Adam Mackley's struggle to get his legal paternity recognized in Utah to get my granddaughter Cadance back, that has notes I will NEVER be able to hit.  (The was the world's longest sentence EVER)

Starting mid December of 2013, while very ill and destroyed from a trip I made to Utah to help ensure Adam's case could be appealed, this randomly selected song would bring me from a deep sleep and wake me with an ever louder shout of 'Natalie'. I would be hearing 'Natalie' screamed in rage by Bruno Mars from the inside out. It wouldn't stop til I got up and badly sang some bars & danced a bit of a jig. I know it's a fanciful fantasy but I imagine myself to be dancing just as energetically and rhythmically as his backup and band. (Hey! It's the ME version of dancing so back up there;)

Here's the YouTube video of my favorite performance of Bruno Mars performing 'Natalie'.

The truth is I would put my rage about my illness and the horrific neglect and treatment by the medical profession, governments and society I've received, to this music if I could! And my nog on advocacy for the rights of birth fathers. There's a selfish piece there: that's my granddaughter Cadance they stole. I want and long for her to get back to us before my illness takes me out. 

Putting rage to music. Awesome.

Oops! My format isn't right. Check back!
ME Audio To Natalie 9.14.m4a

So my technology challenges are keeping you from hearing my badly sung version I've retitled simple: M.E. It might be a gift actually:)

As I listened to the song today I keyed in on the ominous percussion and angry voice - so angry that when you sing about what you would do if you got your hands on the source of your anger the only way you can describe what you would do is sing 'Woooo' in a high pitch. And it's funny because that is the one hard note I CAN hit.

So I will keep listening to this song until it's work is done. And thank you Bruno Mars. 

PS. If this post seems familiar it's because I've written about this before. So will either seem like I'm further along in my journey to express my anger in a healthy way or I will be seen as obsessed with Bruno Mars. We will see how this goes;)

Peace be with you and all that jazz!

Copyright (c) Chardale Irvine - 2014. All rights reserved. 

Saturday, September 13, 2014

Grandmother With Terminal Illness Fears She May Never See GranddaughterAgain

Grandmother With Terminal Illness Fears She May Never See Granddaughter, Cadance, Again

A Florida grandmother, who is in endstage ME (Myalgicdt Encephelomyelitis), is on a pilgrimage back to the mountain states where she was raised and where she raised her own children. Chardale Irvine, or Grandma Char as she's known to her grandkids is back to see and connect with her 7 grandchildren and their parents. As of now she's seen all 6 boys, ages 11 weeks to age 13 but the visit with her granddaughter may not happen in time.

Her almost 3 year old granddaughter, Cadance Barney, has been withheld from Mrs Irvine's son, Adam Mackley, for over 18 months. She was taken at age 14 months with the support of a corrupt Utah Family Law Court system and Cadance's mother's family, who are apparently willing to invest any amount of money to make sure Cadance's biological father is not a part of her life.

This is what they weren't prepared for: Cadance's biological father, Adam Mackley, who has made monumental efforts to demonstrate that he has the full intention and desire to be in his daughter's life, will not stop fighting to be able to function as Cadance's father again. Why would a father go to such lengths? Because he doesn't want Cadance to ever think she's not loved or worth fighting for. Because in those 14 months with her a permanent bond formed, as it only can with fathers and their children.  That bond over these last 18 months represents an open and deep wound that can't be healed for him until he gets his daughter back. And Mrs Irvine has tried to support him in every way she can though her progressing illness has severely impeded that. 

The truth is Adam has had legal problems but in America even people in prison are allowed visitation with their children. This is largely because studies have shown that when children are able to have a relationship with their biological father, regardless of the father's circumstances, it helps the child immensely. Direct results show male children grow up with fewer legal challenges and female children have a much lower percentage of promiscuity and better self-esteem if they have access to their father.

Cadance was born with significant birth defects in her hips and legs. She had her left foot amputated by doctors at Shriners Hospital in Salt Lake City at 10 months to prepare to receive a prosthesis. Adam did the first three days of her post op care at his home and brought her to Shriners for her post op follow up. 

Cadance had just received her prosthesis one week prior to visitation being denied and was cruising along furniture immediately. She took her first steps two weeks after the last time we saw her.

With little medical acknowledgement of her own illness until very recently, Mrs. Irvine's health has significantly deteriorated. As the illness continues to cause irreversible brain damage, she fears Cadance may never know who her Grandma Char is and this walkabout to bond with her grandkids before it is too late holds an open and gaping void with no way, thus far, to see Cadance.

What would Grandma Char want Cadance to know? That she is loved beyond measure by a whole family, some of whom she has met and many more that she hasn't yet met. That her dad and her grandma will not give up in their efforts to bring her back to this family. That Cadance comes from a family of courageous, adventurous and creative travelers, whose people are beautiful, strong, creative and intelligent.

This little girl, who looks just like her dad, who looks just like his mom (and twin brother), who looks just like her dad, has a place set at our table and in our hearts. This family wants her to know that it doesn't matter how long we are kept away or how far away we are in miles, she is a part of our family.

But Grandma Char worries. Will the corrupt Utah family law system and efforts to illegally sever emotional bonds hurt Cadance? Has it already hurt her?She fears that if Cadance has even 1/100th of the pain her dad and grandma have due to this separation, then it is too much. This little girl with all of her physical challenges will only benefit from more people to inspire her, encourage her and help her find her way.

So Grandma Char continues her pilgrimage to see family in the mountain states with the sacred hope that a miracle will happen for her to see and bond some more with Cadance.