Saturday, May 7, 2016

M.E. And Me

August 8th was International Severe M.E. Day. (Myalgic Encephelomyelitis). I have had this illness for 19 years with 8 years of partial remission from using probiotics and bovine colostrum to heal my gut and boost my immune system.

I'm not in remission anymore and the viral load that has plagued me roams mostly unchallenged in my body and my brain.

In 2012 a bronchoscope confirmed I have Herpes Simplex I in my lungs. Between 2012 and 2014 the flares occurred throughout my body - lungs, stomach, inside my left hip, the upper part of my neck and then finally it moved into my brain.

Since then there is less specific pain but I have started having episodes - like TIAs -as the virus does lobectomies in my cerebellum. I don't know how long it will take, how far it will go or what it will take with it. I have yet to find a doctor with any idea of how herpes works in the non- HIV herpes world.

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